Name | Vukan Vidoejvic |
---|---|
Born | May 2020 |
Gender | Male |
Diagnosis | Distal 10q 10q25.1 |
Parents | Nemanja and Marija Vidoejvic |
City | Belegrade, Serbia |
majche.mld [at] gmail [dot] com |
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January 21, 2021
Hello! I apologize if my vocabulary is bad. We use a translator. When we thought that medicine had advanced Vukan was born from the first properly monitored high-risk pregnancy, born 41 + 4 after birth, a karyotype suspected of Down syndrome was made, characteristically placed lower shells, straight face, slanted eyes, small nose no smile line I no hole above the lips initial diagnosis 20x24 current final distal triomy 10x25.1 there are 31 genes on his arm 6 of which are problematic and all are related to development Vukan is still small so I can write you a little about his development what is good is that he laughs a lot reacts to the environment eats well we did all the tests the cardiologist thickened the left ventricle suspecting our insulin resistance in pregnancy vision good hearing we are waiting for testing psychiatrist for now slight delay hypertension and hypotonus muscle radiologist good no changes in the brain and ventricles the head is growing properly 1cm every month In the hands is quite weak and does not have good coordination with objects, grabs both hands with 7 months first turn, puts his feet in his mouth for 5 months for now developmentb he is still tolerated not to be late for more than a month, still does not sit still baby still does not connect the two letters he had a cold trahitis for 7 months of vaccines received regularly without the hassle head back much back or imitate my movements there and mourn the language I managed to breastfeed up to 6 months, although I was told that I would not be able to because of hypotonia muscle faith in God is the strongest bearer of a balanced translocation is his mother I would like to mention that 91 years ago my mother did aminocynthesis with me, I don't know if it is still done in your countries. century And that I don't need it. so the medicine regularly go to physical therapy, is quite advanced This is the first case in our small country, I do not have a lot of information every piece of advice we would welcome regarding the development and stimulation as well as to supplement speech therapist begins around the first birthday, vukan is magical and we we are the best team this is my boy
Nemanja and Marija Vidoejvic
Update September 29, 2022
Vukan sat down to 13. Months Creeps with 18. Months First standing up with the help of hands 18 months. Vukan is now 28 months old and still not walking Hip hypotonia is a problem. At the age of 2 years and 2 months, his first intelligence assessment was done. Mentally, Vukan is one year and 4 months old, which is only 11 months apart, and we are very satisfied. He has a narrowing of the esophagus established by gastroscopy, we have no problems with the kidneys, heart and organs, hearing is also good, dioptre vision + 5.5 and strabismus. Micro penis and a problem with the penis, which we will most likely operate on. Very cheerful, he likes cartoons and listening to children's songs, he loves children and kindergarten, he loves everyone around him, he has a mania for closing doors around the house, he loves all toys that light up and play, he doesn't know how to play with children in pairs, but he loves them very much loves, we don't have an autism spectrum diagnosis, he still doesn't speak. On a special diet without gluten, casein, meat and mental progress, on the supplementation of many herbs. He sleeps well, he is very attached to his dad, he likes riding in the stroller and seeing the city, he doesn't get hysterical because he can't walk. Tantrums, throwing your head into pathos, stubborn and undemanding. Vukan did not receive 8 stem cell therapies in Istanbul at Liv Hospital, after each therapy he showed a great physical improvement in terms of overcoming hypotonia. Therapies 5 days a week physical, reeducator, speech therapist, in addition, he had Tomatis therapy as well as physical Vojta, which helped him a lot, his feet are still in the varus position. All in all, a very happy child