Information
Name Vukan Vidoejvic
Born May 2020
Gender Male
Diagnosis Distal 10q 10q25.1
Parents Nemanja and Marija Vidoejvic
City Belegrade, Serbia
Email majche.mld [at] gmail [dot] com
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January 21, 2021
Hello!
I apologize if my vocabulary is bad. We use a translator. 

When we thought that medicine had advanced Vukan was born from the first properly 
monitored high-risk pregnancy, born 41 + 4 after birth, a karyotype
suspected of Down syndrome was made, characteristically placed lower shells, straight face, slanted eyes, small nose no smile line I no hole above the lips

initial diagnosis 20x24 current final distal triomy 10x25.1
there are 31 genes on his arm 6 of which are problematic and all are related to development  

Vukan is still small 
so I can write you a little about his development
what is good is that he laughs a lot reacts to the environment
eats well
we did all the tests the
cardiologist thickened the left ventricle suspecting our insulin resistance in pregnancy
vision good
hearing we are waiting for testing
psychiatrist for now slight delay
hypertension and hypotonus muscle
radiologist good no changes in the brain and ventricles the head is growing properly 1cm every month 

In the hands is quite weak and does not have good coordination with objects, grabs both hands
with 7 months first turn, puts his feet in his mouth for 5 months
for now developmentb he is still tolerated not to be late for more than a month, still does not sit still baby still does not connect the two letters
he had a cold trahitis for 7 months
of vaccines received regularly without the hassle
head back much back
or imitate my movements
there and mourn the language
I managed to breastfeed up to 6 months, although I was told that I would not be able to because of hypotonia muscle
faith in God is the strongest

bearer of a balanced translocation is his mother
I would like to mention that 91 years ago my mother did aminocynthesis with me, I don't know if it is still done in your countries. century And that I don't need it. so the medicine

regularly go to physical therapy, is quite advanced
This is the first case in our small country, I do not have a lot of information every piece of advice we would welcome regarding the development and stimulation as well as to supplement
speech therapist begins around the first birthday,
vukan is magical and we we are the best team
this is my boy
Nemanja and Marija Vidoejvic

Update September 29, 2022
Vukan sat down to 13. Months
Creeps with 18. Months
First standing up with the help of hands 18 months.
Vukan is now 28 months old and still not walking
Hip hypotonia is a problem.

At the age of 2 years and 2 months, his first intelligence assessment was done. Mentally, Vukan is one year and 4 months old, which is only 11 months apart, and we are very satisfied.

He has a narrowing of the esophagus established by gastroscopy, we have no problems with the kidneys, heart and organs, hearing is also good, dioptre vision + 5.5 and strabismus.
Micro penis and a problem with the penis, which we will most likely operate on.

Very cheerful, he likes cartoons and listening to children's songs, he loves children and kindergarten, he loves everyone around him, he has a mania for closing doors around the house, he loves all toys that light up and play, he doesn't know how to play with children in pairs, but he loves them very much loves, we don't have an autism spectrum diagnosis, he still doesn't speak.

On a special diet without gluten, casein, meat and mental progress, on the supplementation of many herbs.

He sleeps well, he is very attached to his dad, he likes riding in the stroller and seeing the city, he doesn't get hysterical because he can't walk.

Tantrums, throwing your head into pathos, stubborn and undemanding.
Vukan received 12 stem cell therapies in Istanbul at Liv Hospital, after each therapy he showed a great physical improvement in terms of overcoming hypotonia. Therapies 5 days a week physical, reeducator, speech therapist, in addition, he had Tomatis therapy as well as physical Vojta, which helped him a lot, his feet are still in the various position.
All in all, a very happy child


Update March 20, 2024
Hello, it took us 3 years and 8 months to finally walk.
 Vukan's gait is unstable, his balance is bad, he falls a lot because he can't stop or turn around or jump over an obstacle.
 We will hold hands for a long time as far as I can see 🤭

 Vukan does not form words or sentences yet
 He is very bad there.
 He knows basic words and commands but doesn't use them often.
 He understands everything, he is very stubborn, and often unbearable because he likes to scream when it is not his way.
 We performed surgery on both inguinal hernias as well as the descent of both testicles, they went smoothly.
 Other organs are good.
 Strabismus still present.
 He is shorter in height and soon we will start receiving growth hormone.
 Picky eater, sensory problem.
 He likes dough, he doesn't like wet, slimy and cooked dishes.
 He would listen to songs day and night ❤️
 His character remained the same.
 EOE is under control, although the fear of return is still present.
 All in all, he is progressing slowly, but he is a good and very happy child.