Matthew is my second child. my first child is a carrier like me. there is family history. kaylia sweeney is the my(mothers) sister. 
he was born with a whole in his heart. small eyes and nose. he does not a fimer in either leg. both feet are clubbed . one left is short boned and curled. he does not have use of either ankle. we have a cardiologist, endocrinologist, genetics, orthopedic. he will never be able to walk without prosthetics. I dont think 5 or 10 years from now his quality of life would be any different if he was in a wheel chair outside of the home. he prefers sleeping on something soft and plushy. like a thin pillow being he can not lay flat. he can not use a normal car seat. he has a car bed. being he had a normal tounge and a small mouth his air way does become constricted. he really is my little bundle of joy/worries