December 7, 2009
I have some news about Valeria, she passed one year with feeding
problems, she stayed at the hospital for 15 days and had to take a lot
of medicine, until one day I couldn't stand it anymore and took her to
a homeopathic doctor.. and problem solved!
Now she can eat almost everything but milk or derivates and I try not
to feed her with meat (but she does eat chicken and fish) .. and she's
doing wonderful, she has gained weight, and she hasn't gotten sick at
all.. She only takes vitamins since a long time ago.
She has developed very much, she is about to walk, in fact she does it
but holding the furniture (i'm sorry, my English is not very good).
She's starting to talk she says papapa, abu, tete and a few more
sounds and her therapists are very positive and happy to see Valeria's
She also is much more involved with people, she's a very tender girl,
she gives kisses and blows candles, gives hi5, waves hello with her
She very flexible and has learned to roll over. Her fine motor skills
are improving a lot, she learns everything the therapists teach her.
Her favorite toys are balls.
Ma. Jose Montessdeoca
Update January 15, 2013
I'd like to update information on the web site about my daughter Valeria.
She is now 5, she can walk pretty well and stars to run. She has improved
her hearing, although she still uses headphones but for two times in two
years its has been calibrated on lower volume.
She learns a lot. Now she is in kindergarten with 4 year old kids. She can't
talk but she does says a lot of sounds to refer to common things like water,
tv, dad, and so on.
She knows well how to use mi cellphone and the computer (she likes watching
videos on youtube!)
She doesn't have any heart or kidney disease or any disease, she's a healthy
girl. She had problems with feeding but no more.
Now she doesn't have problems to sleep. And that's good news because some
years ago she only sleep few hours at night. Now she sleeps all night!
She´s very active, she likes playing with her toys, still her favorites
ones are balls.
She goes to speech therapy 4 times a week, physical therapy twice a week,
early stimulation and therapeutic pedagogy. We tried therapy with horses
and went great, and hydrotherapy too, both were very helpful and we will
repeat it next vacations.
I'm sending you some pictures too.
I'm very glad for joining the group and for sharing this information with
all of you. Our kids are our blessings.
Update January 19, 2016
Hi, it's been three very busy years for Valeria since the last time I wrote. Now she is 8, she can walk very well and walks up the stairs very well too but still have some trouble in walking down them. She has now a little brother and since the pregnancy she had understood pretty well the concept of the bigger sister. She loves her brother very much and takes good care of him. She tries to teach him some games and the few words that she can say.
Her speech hasn't improve. She doesn't want to use her earphones I think because they can hear better, but without them she screams a lot and doesn't get any better.
She's a very active girl, she like to play with other kids and still like balls in the first place, she likes going to the pool but can't swim very well yet.
Her health has been very good, although she has had urinary infection twice last year. She also has dermatitis and that's why I have to put a lot of moisturizing cream and bath her three time a day or more. Fortunately, she has no longer reflux but sometimes she gets constipated and throws up some liquids.
I'm having troubles with her behavior because she easily turns aggressive, she hits her head and bytes her arms just because. That worries me a lot, I appreciate if someone who had have the same problem can give me some advice.
Update February 21, 2023
Hi everyone! I'm writing you to update Valeria's site.
On 2022 Valeria was on surgery on his right foot. She had a deformity since she was born but doctors advise to correct it when she was older and her foot stopped growing. Now she's 15 years old, so we had the triple arthrodesis done, which went great!. This year doctors are concerned about her knee and are thinking about making surgery on this too. The problem seem to be hyper-flexibility which is deforming her legs. I'm sending you new pictures, One of them is for her 15s, she was beautiful and loved to pose just like a model !!
Some concerning is also about her behavior because when she gets frustrated (mostly for not being able to communicate with words) she hits herself in her head, or hits walls with her elbows and feet. So, psychiatrist recommended risperidone, only few drops at night.
On the other hand, Valeria seems to be hearing so much better even when she's not using earphones in order to stimulate her hearing sense. This year is also reattending equine therapy which loves it!
MariaJose (proud mom of Valeria, 10q22-10q23)