|Eileen and Rene Morin
|Chicopee, MA, USA
June 29, 2011
She has always been small, even now at age 27 she is only 67 lbs. She never crawled, but did stand up at age 5 and with help from Shriners Hospital and a walker she took her first steps. Never cried so hard in my life. Tears of joy. Lisa has poor vision as well as a lazy eye, she has a high arched pallate, severe curvature of the spine, moderate retardation, speech problems (does some signing), hypotonia, mild seizures and a few other small issues. She is always happy and lovable and has been her whole life.
I was always told that Lisa had a very rare condition, but have never been in contact with anyone else that has a child with this disorder. Lisa lives at home with me and her stepfather and has an older brother and sister. She loves music and baseball (Boston Red Sox).